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I find that MDS is a bit easier to understand overall than aplastic anemia and PNH. Aplastic anemia mystifies me.
My mother has aplastic anemia with a small PNH clone. The hematologist said that PNH and aplastic anemia are very related, even though many people have one or the other without ever getting both. They are both very autoimmune, as opposed to MDS, which is a pre-leukemia condition.
If my mother were to develop PNH, it would be secondary PNH, not primary. The doctor said there is a big difference between primary and secondary PNH. She takes folic acid for the small PNH clone.
They don't like doing bone marrow transplants in general for severe aplastic anemia, unless the patient is very young. The hematologist told my mother that it is a last option for people over 40.
I think that BMT's are more common with people with certain types of MDS.
@Mario: Wishing you all the best. I am so happy for you. I understand that your PNH was very severe, and that getting a BMT was perhaps the best option for you.
With love,
Matthew
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