I think I'd better point out the date of my last post. Oops.
I had Vidaza in 2010 and it was stopped because after 6 months I had no response except an increasing blast count. At that stage I was being worked up for a bone marrow transplant. It was after the Vidaza was stopped that I was found to have copper deficiency. My last bone marrow biopsy still showed MDS but my peripheral counts respond (never completely normal) well to copper replacement.
I really have no idea what my current diagnosis really is. Officially I still have MDS and I'm on the Federal Governments Cancer Registry but who knows? My current physician seems to think I will definitely progress to AML at some stage...I'll prove him wrong.
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