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Hi,
I'm in daycare at the moment. I've had my 3rd dose of Vidaza and am in the middle of my first unit of blood.
Blood test today
Hb 84
RCC 2.6
Retics not done
WCC 0.7
Neuts 0.2
Lymphs 0.2
Platelets 150
Hb is better, neuts are best they have been since April and platelets back in normal range. All in all I'm a happy vegemite (apologies for the Australia ism).
Although I still have to have 2 units of blood today, I think I'll get away without a blood transfusion tomorrow.
Thanks for the good wishes I think they're working.
Hope everyone is well.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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