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Old Mon Apr 12, 2010, 11:31 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
How did you decide if/when for the BMT?

My hematologist and oncologist are both urging me to consider a BMT sometime soon. I do not have a related donor. My health is quite good overall with no issues other than the MDS but I am very overweight and not fit at all. My prognosis without the BMT is poor but I'm feeling so good right now with essentially no restrictions and nearly normal blood counts, it is difficult to contemplate this dangerous and pardoxically life-threatening potentially life-saving procedure. The temptation is to wait until I am in a crisis (I'm a big procrastinator anyway) but by the time I know I'm in crisis it already could be too late. I realize that in the end I must choose for myself but I was wondering what the final deciding factor was for any of you.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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