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No offense taken, squirrellypoo - your suggestions are good ones.
I was submitted for a preliminary match search last month and will get results this week as well as another BMB. I had two when first dx'ed in January, a week apart, first by my hematologist showing 20% blasts and dx of AML, second by my oncologist showing 17% blasts and a dx of AML or MDS (she said it was really a matter of semantics and at this stage would not make a big difference in treatments or prognosis). I'll be consulting with the transplant doc soon at University of Maryland where I'm also seeing my oncologist. I live only about an hour away. My Vidaza treatments showed good results right away but my second cycle had better results than my third. I begin my fourth next week.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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