Thread: New to pure red cell aplasia
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  #34  
Old Sun Jun 21, 2015, 09:10 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by praarumu View Post
Hi All,

Do we have any update on the research on PRCA? My kid is still undergoing treatment of consuming predinisolone... But still his Hb keeps going low and high... shall I ask my doctor for any other drugs? I am much worried to see my 2 year kid consuming steroids for longer time...
Patients that young usually have Diamond Blackfan Anemia.

Here is some information:

http://www.cdc.gov/ncbddd/dba/

http://dbafoundation.org/
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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