View Single Post
  #7  
Old Sat Dec 17, 2016, 12:21 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi lizab,

Although your son's cellularity is low, it sounds like his blood counts are staying stable but somewhat low. The remaining stem and progenitor cells must be doing a good job cranking out new cells!

Many of the doctors advise only doing a BMB if there is a change in blood counts. Given this, I think it would be reasonable to back off the scheduled 6 month BMBs unless his counts drop. (I am not an expert though. So listen to your doctors if they are advising otherwise.) Monthly blood draws are pretty benign. If something is happening, it will likely show up in the blood first. Maybe you can stretch these out over time, if he continues to remain stable. I've found that having less frequent testing actually lowers my anxiety, as I am not always thinking about this disease!

I hope things remain stable for him for a long, long time!
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote