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Old Mon Sep 2, 2013, 07:58 AM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Quote:
Originally Posted by Honey View Post
The opthamologist thought it was migraines that caused my blurred vision, although only once did I have a headache and I don't get migraines.
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As for the hands, lip, eye twitch etc, I am thinking it is a vitamin deficiency, I know I am very low on D, which can also point to MS. I used to think it was poor circulation and that it was cold, but I have got cramps in my feet in a hot shower. I think I will ask the haemo to run some vitamin tests.
Hi Honey!

Sorry to hear about your shortness of breath.

Two thoughts on the items above:

1. I have occasional ocular migraines which cause blurred vision (mostly in the periphery) but do not result in headache. I cannot use the computer or read when these happen; they typically last 15 minutes or so. My mother and daughter have them as well. And my wife had her first one a couple of months ago.

2. My wife has pernicious anemia -- an inability for her stomach tissue to absorb B12 -- and has had it for years. She injects herself with B12 twice a month. When her B12 is getting low, she has numbness and tingling in feet and hands. So, you might want to look at B12 as well as D.

Take Care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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