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We are moving ahead with Anadrol
Hello Friends,
We are just back from our Cleveland Clinic consult with Dr. Maciejewski.
Grant had his 7th BMA & B and we are now awaiting cytogenics. Prelim results were status quo. Empty marrow, no blasts. The plan (agreed upon by Dr. Maciejewski, Dr. Margolis from Ch Hosp of Wisc and Dr. Young at NIH is that Anadrol (anabolic steroid) is the best next choice for Grant.
We also decided a few weeks ago, after looking at his counts, that after 6 months, the herbs have not had any negative or positive effects that are apparent so he stopped taking them.
There was some discussion in Cleveland about switching from Exjade to Desferal for his iron overload but Grant is not in favor of that so for now, we will stick with the Exjade.
His liver enzymes will be monitored closely while on the Anadrol and we hope for minimal side effects.
Wendy B.
mom to Grant, age 16 1/2
dx 12/4/98 AA
ATG x 2, cyclo, mycophenolate, danazol, prograf, zenapax, acupuncture, herbs... pretty much tried it all!
Currently transfusion dependent on platelets and prbcs
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