Hi Greg,
Like you I was dx with MDS Interm-1, all counts low and tx dependent from dx 2006. My EPO was more than 800 so I was not treated with EPO drugs. I felt OK and was satisfied with supportive treatment until I needed tx every week during the spring 2010. Then I accepted Thalidomide with good results. I asked my dr if I could continue with Prednisone since Thalidomide (and Revlimid) increase counts in different ways.
If you choose Revlimid remember that they now give lower doses for less toxicity - they can get positive result with 5mg every other day and the drug should be combined with Prednisone or a similar drug.
You have perhaps already seen the presentation of Dr Alan List from Edinburgh 2011. He is reporting about the new drugs for MDS. Perhaps you will find one of them interesting?
http://www.multiwebcast.com/mds/2011...and.q%26a.html
Kind regards
Birgitta-A
72 yo, Thalidomide since June 2011. Last tx Sept 2010. Latest counts HGB 13,2, WBCs 5.0 and platelets 95.