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Old Tue Aug 27, 2013, 08:02 PM
Whizbang Whizbang is offline
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Join Date: Aug 2013
Location: Central NJ
Posts: 299
Dacogen

Figured I'd post this here for future reference...

Received 41mg daily for 5 days Dacogen 8/5 - 8/9/2013...

Side effects, slight nausea (minor), major constipation... My advice is to start taking Miralax the day before you start chemo... Took 3 days to get regular again. Also was very tired / sluggish, which is par for course...

As you can see below, Dacogen made my WBC & Neutrophils take a dive, and I am waiting for my third post Dacogen blood test 8/29, which will hopefully show a rebound...

I'm currently on 250mg of Dicloxacillan 4 times/day for pop up bacterial infections (boils under the arm pits, and sty in one eye)...

Dr. is reluctant to give me nueprogen fearing it will raise my blasts...
(although I've read somewhere that it doesn't do so statistically)

I'm scheduled for my second round 9/3 - 9/7/2013, we'll see if I can improve by then...

Code:
Component  Standard Range  6/14  6/19  7/18  7/30  8/15  8/22
RDW-CV     11.6-14.4 %     18.1  18.1  16.1  15.1  13.8  18.5
RDW-SD     35.1-43.9 fl    59.1  58.1  51.5  48.1  40.9  55.9
HGB        13.7-17.5 g/dl   8.0   9.1  11.0  11.0   9.9  10.6
HCT        40-51 %         23.3  26.0  31.7  32.4  27.8  30.3
PLT        150-400 K/ul      70    76    95    91    51    60
RBC        4.63-6.08 M/uL  2.57  2.91  3.56  3.64  3.29  3.45
WBC        4.2-9.1 k/ul     2.0   1.9   3.2   3.5   2.6   1.7
NEUT%      34-68 %           46    48    53    62    52    31
NEUT       1.8-9.0 K/uL     1.0   0.9   1.7   2.2   1.4   0.5
LACT-DEH   313-618 U/L      693   695   670   598   ---   688
BILIRUBIN  0.2-1.3 mg/dL    ---   1.8   1.5   1.1   ---   1.8
__________________
Married, father of three daughters; now 46; diagnosed w/ Major form MDS 6/18/2013; had low counts across the board; Multiple chromosome abnormalities; Finished 2nd round Dacogen 9/13; SCT - Oct. 31, 2013; Sibling match 10/10 ; 5.5% blasts down to 3%, now 1% (post BMT)
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