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Old Wed Sep 13, 2017, 11:55 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Welcome, AliceKay1.

I hope Vidaza is helping you and that you haven't had much trouble from side effects.

Have you been following your blood count numbers? Low counts are usually the first sign of trouble, leading to the diagnosis, and the hope is that counts will rise after a certain number of Vidaza cycles.

Was the meeting you attended the Oakland Leukemia & Lymphoma Society chapter? Sometimes MDS patients show up at LLS meetings, but mostly they are leukemia and lymphoma patients. Some issues are common to everyone, but I know it's not the same as talking to another MDS patient.

If you can make it around the bay, there are 10 meetings a year of the San Francisco Bay Area MDS Support Group in Palo Alto.
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