Bone Marrow failure research
I have joined the grassroots action center and urge all of us to do as much as we can to promote the research of this disease. We need all the help that we can and have to spearhead this movement. I myself - without the help of the NIH research (and many more of us here) would not be around today if it was not for active reseach. I have relapsed - but it was 7 1/2 yrs that I would not have had. Please click the button on the email - it is easy to do.
Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -