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Old Mon Jan 23, 2017, 04:19 PM
Mo Sh Mo Sh is offline
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Join Date: Jan 2017
Location: egypt
Posts: 7
intermittent vidaza / dacogen treatment

hello,
my mother is diagnosed with MDS RAEB-2 (excess blast of 11%) since march 2016.
her doctor recommended a 6 month treatment of VIDAZA.
she took her first two cycles then Vidaza isn't available anymore in our country ... so her doctor recommended a treatment of DACOGEN.
She took her first one after about 35 days instead of 21 ... then Dacogen also start to vanish from the market .. and doctor told us to take CYTRABINE as a template cure until we find dacogen again ... after about 50 days .. we found it and she took it.
Again it disappeared for two other months .. and we made another analysis and it shows an increase of blast (16%)
she took CYTRABINE again .. but this time it was to hard on her .. that her platlets don't want to get raised over 20 ... DOCTORS say it will take time but her marrow will work again.
and she took a lots platlets transfusion to survive this period .. and yet we hope for the best ..
MY QUESTION IS: if we are able to find dacogen again .. will it be useful?
or we should start travelling and search for vidaza or other treatment?

Thanks
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