Thread: Guillan Barre
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Old Sun Jan 13, 2019, 09:13 AM
Marlene Marlene is offline
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,352
I'm so sorry you have to deal with this complication. A very frightening complication. I hope it reverses itself quickly so you can heal.

John had to deal with CNS and peripheral nerve damage from his treatment so we understand how frustrating it must be for you. It can take a while for nerves to heal so be patient and remain hopeful. John would have improvements, then plateau for a while.

Wishing you only the best....Marlene
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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