Thread: Guillan Barre
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Old Sun Jan 20, 2019, 03:26 AM
DanL DanL is offline
Join Date: Dec 2010
Location: Denver, CO
Posts: 585
Thank you for the link to the study. This will be a good foundation to speak from with my doctors this week. I am seeing the neurologist, getting an EMG, and seeing the oncologist as well. I have been struggling to find recent articles that are this specific.
MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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