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Old Thu Sep 24, 2015, 12:53 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
That's great - your doctor having a connection at Emory also sounds good - you may want to consult with him/her directly at some point and your doctor should be happy to make a referral. You may require treatment there at some point.

Your doctor should be easy to communicate with, smart enough to know when he doesn't know something, confident enough to ask more experienced colleagues for advice - I have some of the best doctors in the world and they routinely ask their colleagues about my case and work easily with others - that's what good doctors do - if you doctor thinks he/she knows the best treatment and doesn't need to talk to anyone else he/she knows nothing. This is a complicated illness with many approaches which may be right or wrong and the best doctors will ask others for advice - ultimately you will need to rely on their experience and need to trust them. Glad you are getting better attention.

Vidaza and Dacogen are pretty similar - convenience is as important a consideration any other - probably more so. Good luck and glad you are making progress - Best Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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