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NMRunner,
How frustrating to be unable to get an explanation, or even appointments!
Irritable bowel syndrome can explain abdominal swelling, but I presume that the colonoscopy ruled that out.
Have you asked the doctor about celiac disease? It could explain your swollen abdomen and nausea, especially since you alleviated some GI symptoms by avoiding gluten before.
Bone marrow diseases can evolve, and they can also avoid detection, so your evaluation in 2005 may not be the final word. It may be time for an updated bone marrow biopsy.
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