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Old Sun Mar 5, 2017, 02:29 PM
bailie bailie is offline
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Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
For sure the test affected my treatment. I was immediately started on Vidaza to get my CBC counts in position for the SCT. With the mutations I was given about 7-8 months to live without the Vidaza and subsequent SCT. There was not much flexibility. It came down to the basic choice of living with the SCT or quickly going downhill to death. As it has happened by dealing with this promptly, I have only had one transfusion (during SCT when platelets dropped to 8) during the last 3 1/2 years.

I just had a lifelong friend who died this last week from MDS after being diagnosed 8 months ago. He was late getting the diagnosis and treatment.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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