I've always worried about my husband's diagnosis because he was not formally diagnosed until April 2015. But his first "incident" was a mysterious infection with hospitalization with extremely low platelets and CBCs in April 2008. From that point until 2015 his platelets hovered around 45-95. In 2015 I pushed for a BMB and then he was diagnosed.
I always worry about those years between 2008 - 2015... and possibly even before 2008 before he was ever getting blood tests. (he NEVER went to the doctor). I worry that those years are tallied into his "prognosis"... but as we all know with this frustrating disease... prognosis numbers make no sense. Especially as a fairly young man with "early" diagnosis.
Oh well, I guess worrying won't get me anywhere. I try not to obsess, but I just hate this feeling that he's driving around on bald tires and everyone is waiting for him to have a blowout before they do anything.
