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Thank you Wendy and Marlene
Some more questions please.
Wendy did your son only take the exjade for a month because of the raised liver marker? Aparently the protocol is to stop the meds until counts are normal and then start at a lower dose and monitor weekly not monthly as we were told. David has stopped all but essential medications to give the liver a rest. Fortunately his autoimmune arthritic condition has settled and his pain level is lower. it will be interesting to see how he goes with no vitamins etc. even things that support liver function will still put a strain on the liver when it is inflamed. They are calling it drug induced hepatitis.
Marlene, What treatment did John have to put him in remission?
Thanks once again. Exjade has only just become available here.
Helen
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