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First post
Hi, I am the wife of a recently diagnosed MDS RAEB2 sufferer.
We have entered a world where 'normal' has a whole new meaning.
We are in watch and wait mode - my husband is reasonably well in himself, only red cells bombing all the time and he receives 2 units of blood approx fortnightly now.
The last 4 months have been hugely stressful,bewildering, anxious and many more emotions. Each visit to the consultant has him saying "when you need treatment it may kill you,so go and enjoy yourselves". Any information we have learned apart from a very basic pamphlet given to us at diagnosis has been found on the internet. Obviously a lot we read frightens us to death!
We are trying to stay upbeat and positive that the disease will not progress to AML anytime soon, but some days are harder than others.
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