|
Hi Jules, Just letting you know that my husband was diagnosed two years ago with raeb-2. He has been on Vidaza since then. I like you was in panic mode but a lot of the info on line is old and out of date. They let me and my husband think that he had just a few months. Also, you might want to to check out Kirby Stones entries. He inspired me to have a whole new attitude.
This disease is scarry business and sometimes it takes being demanding to get what you need. I realize that its hard to get vidaza in the UK but perhaps you can get into some clinical trials. Stay positive and strong. If you need any more info please feel free to ask. I will answer any questions that you have regardless of what they are. Sincerely, Rose
__________________
Husband diagnosed 10/08 RAEB-2 Started Vidaza treatments in Jan 09 until now
|