Hi Jools.
I had my BMT from an unrelated donor at Kings last summer and I cannot recommend Kings or Professor Mufti (the MDS specialist there) highly enough. You should check with your consultant to make sure that he is referring with Prof Mufti on your case and sending your BMB results down for a second opinion.
As Birgitta has mentioned, Vidaza is a hot topic right now, with NICE initially rejecting it, and now it's being reconsidered thanks to the fight of a bunch of cancer groups and the UK MDS Patients Support Forum.
There was a BBC News article about the fight to overturn the ruling back in March.
cheers, melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
Last edited by squirrellypoo : Mon Aug 16, 2010 at 07:52 AM.
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