|
Update
Watch and wait is now over. My husband is now transfusion dependant (fortnightly),neutropenic and platelets dropping fast. Another bone marrow being arranged to see if blasts over 20% yet. If they are not, the "good news" is that in the last 2 weeks a local charity has agreed to pay for him to have Vidaza - it is not available on NHS in UK - as he is now High Risk MDS, IPSS 2.5 and therefore eligible for the funding.
I cannot put into words the gratitude we feel that this is now a real possibility.
We continue to try and remain optimistic and upbeat for his future, alongside the underlying fear,dread and anxiety I know you will all recognise as being part of living with this horrible disease.
|