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Johns Hopkins is very focused on GvHD prevention. They do high doses of Cytoxan post transplant to avoid the use of immunosuppressants or steroids. I chose this route for my 10/10 MUD transplant and have experienced some skin and eye GvHD but nothing too bad. I'm happy to have avoided the immunosuppressants and steroids altogether thus far (3 years). Memorial Sloan-Kettering in NYC does t-cell depletion. I know at least one person who has fared extremely well from there, also 3 years post transplant for MDS. I also know Hopkins does many Haplos but have no personal experience.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
Last edited by mausmish : Mon Dec 2, 2013 at 07:18 PM.
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