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Old Sat Sep 9, 2017, 01:54 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Rarity,

You mentioned that your husband has trisomy 8. This is thought to be a prognostic marker of immune mediated MDS that is responsive to IST. So keep this in mind, should his status change.

My doctors started to talk chelation after 15 units/bags of blood. They weren't ready to take action yet, but we started talking strategies. I think 20 units of blood is where doctors start to worry about iron overload.

Viruses can be nasty and are considered one of the triggers for bone marrow failure. I think this was the case for me!

Hope your husband stays stable and strong!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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