Update  I just showed him your post about your son using the Nettie pot and he decided to try it!
I think bc he had never seen or heard of one before last week he was skeptical.
Hopeful, thanks for sharing I wonder if it is a specific type of Claritin (like D?) but his Dr said no Claritin, Zyrtec,... Bc it would mess w cyclosporine levels? I saw on the warnings it was hard on kidney and liver so maybe bc the cyclo already is...
I will find out this Monday and fill yall in
Thx!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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