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Ethan's donor is a 20 year old from Germany. We were just told it is a 2 year wait on our end. Can't wait to meet such a young man who thought beyond himself. I wish I had known about the effects of being on the registry when I was 20. I was clueless.
Just got out of the hospital. Ethan had a full colonoscopy. Our GI doc was amazing. The clear liquid diet they put Ethan on for 2 days was painful, especially since he was still on prednisone. Waiting for the biopsies, but it seems his GI tract looked very normal and healthy. They tested a 2nd time for C-Diff and got a positive. So at least we have something to work on - now on an antibiotic and reducing the steroids (yeay!).
Amazing how those steroids change how they look and the amount of food he eats!!
Thanks for the well wishes everyone!
jen
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Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match
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