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Hey Catherine!
I cannot take credit for crowd sourcing; I'm not sure who came up with that one.
Dr. Olnes opined that my disappearing Trisomy 8 could be the result of the Campath, but, given my increased need for RBC transfusions, he doesn't expect further response. His first line recommendation is Revlimid, though I've asked him about ezatiostat, as well.
So I'm in the hunt from promising new therapies for low-risk folks.
Have a great Sunday!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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