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You really do need a final diagnosis at this point. It's good you are keeping track of your blood counts. Get copies of your bone marrow biopsy results as well as all your other blood work. You should have a current results for some nutritional elements like B12, iron, folate, copper, b6, vitamin D3 and zinc. Make sure they check those levels. B12 needs to be above 500. There's been recent research finding that a low-normal B12 serum count, once restored, can correct the blood counts. You need more than one b12 shot a week though since it's not the standard approach most drs take. Pregnancy is hard on the body and can deplete nutrients.
There is a third option for treating Aplastic Anemia. It's high dose cytoxan. Dr. Brodsky at Johns Hopkins Hospital has had very good outcomes using this protocol for SAA when it's the first line of treatment. He will also treat with ATG/cylo as well as BMTs. Hopkins is utilizing a protocol to reduce graft vs host disease with BMTs. I would contact them for second opinion.
You need to hear about the options available so you can make an informed decision. If you go the BMT route, a sibling match is the best. If you don't and have to go with matched, unrelated donor, I would really look into the BMT program at Johns Hopkins.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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