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My transplant was 16 months ago and I have a few years on your FIL. I just posted my saga on the MDS forum. I went through loss of strength. Exercise is a big help in that area. You just have to be motivated. I do 45 minutes a day 7 days a week not because I enjoy it, but it is part of my long term survival. I had weight loss of 40 pounds. On my normal diet the weight went down even more. I started eating twice my normal diet and managed to put 30 of those pounds back on. The diet should be high protein. With experimenting you can find food that is tolerable. Some people find the SCT makes food taste different. I love chocolate, for about a year it tasted terrible and couldn't eat it. I find that I can eat food that before I didn't care for. The SCT can mess up a lot of things. My testosterone level recently was 31 with normal of 240 to 900. This would explain some of my weakness. Keep bugging the doctor until you get answers.
Ray
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