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Old Wed Jul 24, 2019, 03:14 AM
Meri T. Meri T. is offline
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 153
GVHD thickening skin

When one GVHD burns out, another takes its place!
The skin inside my right elbow has been thickening. It was the size of around a small coin, but now it's spread to about a handful. The left elbow is beginning to feel some thickening, too.

It doesn't hurt, I can still get blood samples from the vein, but when will it stop? I feel like I'm becoming an elephant or a hippo, if you know what I mean. I reported it to my hematologist at the 2 year check, he didn't say much.

Just wondering if anyone had thickened skin after a transplant, and does it disappear gradually, or will it cover the whole body?

Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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