|
Thanks Marlene.
I am on an experimental treatment. Although I am feeling pretty good and not immune suppressed, and I've had a huge improvement in certain areas, it doesn't seem to be helping my HGB (I have low WBC and pure red cell aplasia - which to me basically adds up to aplastic anemia).
I've looked into valproic acid but the hematologist won't consider it. My other doctor was going to look into it.
A nurse advocating the experimental treatment I'm on for most other things, thinks LDN might be worth a try.
I am getting near the end of my rope with the continual transfusions and the up and down of fatigue. I'd like to have some options in my back pocket that are less drastic than ATG or chemo. The hematologist has already mentioned IVIG. I've already tried cyclosporine with a partial response. I will look into LDN some more, it might be ok in conjunction with or instead of what I'm currently taking.
Deb
|