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Old Mon Nov 22, 2010, 07:45 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Hi Deb,

Sorry to hear the ATG did not work. I do understand why you may want to switch or stop the tacro. Sometimes you really have to push the docs to listen to you and to be more open to different possibilities. Glad you're getting second opinion.

I am very interested in your experience with the LDN. Please continue to report back on it. I know it can take a while to get the proper dosage figured out for an individual.

Is the c-diff under control at this point? Disruption of the good gut bacteria can be very taxing on your health in general.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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