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Hi Lindsayt,
If it were my child, I would stop the iron and see what happens. If your son's energy goes down or he shows other symptoms, I would get his CBC done right away, and if his HGB is low again, bring him to the hematologist. The doctors need to root cause the source of his anemia, but won't be inclined to do this if his HGB is normal because of the iron supplementation.
Have they checked his MCV, ferritin, serum iron, total iron binding capability, folate, B12, or lead levels? Does he eat a well-balanced diet? A hematologist can also look at a blood smear for unusual shapes that may be clues to what is going on.
I think you are wise to stay on top of this, as you know your child best. I would be concerned about a child requiring iron supplements without knowing why.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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