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My husband did High Dose Cytoxan in June of 2002. It was his first line of treatment. He is in a partial, stable remission. His counts are still improving at very slow pace. He's been transfusion free since April 2004.
I too think it's best you consult with Dr. Brodsky directly. He will spend as much time as you need to understand the protocol and he can give you the latest statisitics on response rates, etc....
High Dose Cytoxan appears to work best when it is the first treatment given for SAA. Dr. Brodsky can give the breakdown of response rates by SAA, VSSA and those who had prior ATG treatment.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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