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Greg,
You are so much more knowledgeable than most of us about MDS that I wouldn't even begin to try to advise you. I'm sure you'll research and come up with the best course of action to pursue next.
I pretty much have to let the doctors advise me, and then research it to death after I get home.
Good luck with whatever you decide.
Linda
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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