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Old Sun May 23, 2010, 10:43 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Rachel,

I have to agree with Neil on this one. I can't imagine why the hemo would think MDS. I know lab values vary somewhat, however, my paperwork says MCV high end cut off is 101. This would mean you are barely over normal, which doesn't mean much. So, I would say that it wouldn't be unusual for you to run a tad high as a normal value for you.

If you get your paperwork with your labs, you will see your values, and a range for normal. It may be reassuring to see this.

Are there other blood counts that are off?

I do go to the James in Columbus. I love them. They always take time to answer questions and have been helpful with other health issues I have been having--giving me direction etc.

I also have 5q- Other than having to get a shot every 2 weeks, it hasn't been a big issue in my life. I have been on Aranesp for 3 years now. My last labs surprised everyone. My hemoglobin is 11! That is almost normal. I guess I am just trying to say that 5q, while an inconvienience (and admitedly expensive) is far far from a death sentence.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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