Laura,
I am so sorry to hear about these latest troubles and incredibly angry at how your transplant team is reacting.
You must be going through the whole gamut of emotions right now. I really hope Dana Farber will prove helpful. you've been through so much already. Hang in there and continue to be stubborn until you get results. You know already that you're tough and we're all here rooting for you.
Hugs,
Karen
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog
mausmarrow.com