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I cannot believe the transplant team's reaction! Honestly, that is so unprofessional and bordering on negligent - how can they possibly say it's not their problem, it's a BLOOD issue? It boggles the mind...
This is such a polar opposite of what my transplant team and post-BMT nurse are like - if anything is even slightly off, they do a barrage of tests and have me come in "just in case". It's always "just in case"! And that's the way it should be.
I really hope that your GP and Dana Farber can sort this out for you, it sounds like there's nothing much more to be done at Mayo than to just say good riddance and move elsewhere. Is there any possibility of bringing your flight and appointment forward at all?
melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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