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Old Fri Mar 20, 2009, 06:44 PM
josey63 josey63 is offline
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Join Date: Mar 2009
Location: Corvallis, Oregon
Posts: 7
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First of all I am really glad I found this forum. Diagnosed with MDS in 2006, doctors feel it is the result of me having AA as a teenager, I am a grandmother now. My biggest problem is a low platlet count 15, which makes me unable to take most of the new drugs out for MDS. I am on Danazol which is suppo0se to help my platlet, hasn't yet and procrit weekly. I get transfusions about every 3 months and platlets if I need any type of surgery like placing the port I have for blood draws and transfusions. Also I am on antidepressents though I doubt I am alone on that. I have 2 sons, 2 grandsons and a sister, but poor family support. So I guess I am looking for some here with people who understan what I am going through. Josey
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Diagnosed with AA in 1957, MDS in 2006, low counts on all 3 cell lines, currently on Epogen, Danazol. Platlet too low to take most MDS drugs
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