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Old Fri Oct 21, 2016, 01:33 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Yes, I agree with higher protein diet with hypo cellular marrow. In John's case, we saw an overall improvement in his recovery when he modified his diet based on metabolic typing. Depending on your assessment, you're categorized into a high protein or high carb or mix plan and it gives you the guidance on the type of protein best for your type as well the portions of fat/protein/carbs. I did it with him and found it really helped me too.

We also knew of another VSAA patient who was able to reverse her VSAA with just supportive treatments. She initially adopted a vegetarian diet but at one point, her counts stopped improving until she added meat back into her diet. The addition of the animal protein was needed to complete her healing.

It's very much a trial and error process.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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