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9 years of red blood transfusions
Please do not be tempted to ignore iron overload. My husband had 152 transfusions over eight years and he chelated with desferal. After a cardiac arrest he was checked to see if the iron had affected his heart muscle and it was ok. Unfortunately microscopic iron was interfering with the electric signals in the heart and the tachicardia did not respond to treatment. He left us five months ago after 49 years of a wonderful marriage.
Please do all you can to reduce your iron. We tried everything including exjade which caused hepatitus.
Best wishes to everyone on their journey. Enjoy every moment you can and keep positive and smiling.
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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