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Old Sat Jan 14, 2017, 08:21 PM
medicalenigma medicalenigma is offline
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Join Date: Jan 2017
Location: Laguna Woods, CA
Posts: 14
Promacta

HI Nadine, check with your doctor about the drug Promacta approved just a few years ago. Solved my platelet issues.

Quote:
Originally Posted by Hayitsmenadine View Post
Hello everyone,

I have recently stopped taking cyclosporine and my platelets have dropped from 115 to 50. My Dr told me he would like me to start back on cyclosporine but after being on it for 14 months I would rather not. However, I also do not want bruises all over my body again. Surprisingly my hemoglobin is at 9.6, which is the highest it has been, but I also have PNH so am doing Soliris every 12 days.

I was researching alternative methods like shark liver oil and papaya leaf tea and was wondering if anyone has tried it and what your experience was with it? Or if there any other methods I can do to improve my platelets?

Thanks, Nadine
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