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Old Tue Nov 10, 2009, 04:25 PM
Perry25 Perry25 is offline
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Join Date: Nov 2009
Location: Windsor, Ontario, Canada
Posts: 1
New here

Hi everyone this looks like a great place to get and share info. My story is that I was dx in April 2001 thru bmb as mds monocytic (red), RARS I believe. I've been doing well and dx itself was satisfying to find out it wasn't in my head after seeing at least 4 specialists. Progress of the disease was minimal until the last year when hemo went low. Tried aranesp with some progress but not seen as satisfactory. Now taking aranesp every 3 weeks and neupogen 3x a week. Initially scores and energy improved remarkably. Now the roller coaster is on the way down again but better than at its worst. An interesting battle continues with more good than bad following the direction of a good and communicative doctor and close monitoring. Wondering if there is anyone else who has gone thru a session of aranesp and neupogen together. Good luck to all in this fight.
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