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Hi Mark,
I had the same transfusion regimen as you do when i was sick a little over a year ago. Most people i know of don't get transfused until around 8, sometimes even lower than that. However, I started feeling symptomatic right around 10 and insisted on getting transfused around then. It certainly improved my quality of life. Sometimes it seemed to me that my doctors just saw me as a patient and not a person...they assumed that just because most people can hold off for transfusions for longer, that I should be able to as well. That always got to me but i insisted anyway. I'm glad i'm not the only one! Take care, I hope things are going well for you.
-Brittany
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