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Sending you some good energy
Dear Sheri,
You have certainly come to the right place to share your story and get some support. The folks on these forums have a lot of experience with MDS and will be able to provide you with a good sounding board.
Thanks to your vigilance and care your Mom is being cared for at the CC where she'll get the attention she needs.
Take it a day at a time, and know that it is a long and winding road you are on.
My dad has AML, not MDS, so I am not an expert on MDS.
My dad has been receiving Azacitidine (Vidaza) for the last 18 months and has been getting good results with it. He is not a candidate for chemotherapy and transplant because of his age (79) and because he has a heart condition.
Just with the Vidaza therapy, He has not needed a transfusion for a year.
I hope that your mom gets good results with whatever they try next, and that she finds a good equilibrium.
Take good care of yourself through this upheaval too!
Lesley
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Lesley, daughter of Frank age 79, diagnosed with AML and then biphenotypic leukemia in August 2011. Completed 19 cycles of Vidaza treatment when it stopped being effective.
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