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Old Tue Nov 6, 2018, 09:45 PM
Emily59 Emily59 is offline
Join Date: Jan 2018
Posts: 9
Shands Hospital in Gainesville is a Center of Excellence so that's a great start. It takes a while to wrap your head around this diagnosis. Most likely none of us ever heard of it and suddenly it is a possible threat to your life. Slowly it will start being real to you. You'll get used to looking at blood results to see for yourself what your WBCs and Platelets are up to. It's a lot to learn You catch up soon. My biggest recommendation is to make a list of questions for each meeting. Don't hesitate to ask again if you don't understand. There is also a ton of information on this website and

Take care.
Diagnosed with MDS-EB2 December 2017. Stem cell transplant completed August 2018.
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