Thanks again Baillie for the encouraging words - I am NOT giving up -( who'll make the latkes)? - But this process can be discouraging - and I have a long ways to go. I was never a good distance runner - guess its all about letting go of fear and staying positive no matter what - I won't get through this without always being grateful, humble and positive -which is not always easy - some of the stories one reads on the internet can be very depressing.
Thanks for the thoughts and prayers Cheryl - the link was also very helpful/hopeful.
Tracey - with what you're going through just to get to the transplant I've no business whining - Thanks also Mario for providing some perspective.
I start Retuxin today and get new counts - Screw GVHD - . I'll let you all know how it goes.
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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